Ups and Downs...

Today was fairly stressful for Mom and Dad. Jeremy went to work for a few hours while Ellie drove down to the hospital and sat with MorMor (her mom) for awhile, holding Weston. It feels great to be able to hold him again! Throughout the day there were a lot of doctors, speech therapists, occupational therapists, nurses, surgeons, ect coming in and out of the room. There were also a lot of plans that kept changing every time someone walked in, therefore: stressful.

Everyone was worried about Weston's right diaphragm being paralyzed, or sluggish. There was talk of re-intubating Weston which no one was excited about, then they ran more ultra sounds and x-rays and decided to see if Weston can work it out on his own rather than having to go back to the OR. Obviously, that is the hope so keep praying ;)

By the end of the day, nothing is going to happen at this point, we are just going to give Weston time to see if his body can figure it out. He had lots more tubes removed today as well to see if those were causing some of the issue. Now he has his pacer wires out (they hadn't been used for a few days), his chest tubes out, and his umbilical line (through his belly button) out! It was a busy afternoon for Weston! It is so much easier and nicer to hold him again without all these things on his body! The covering over his incision has also been removed so it's something we have to be aware of and careful of not moving him too much so that doesn't stretch.

Before we left, we got a couple of good pictures of Daddy holding Weston as well as an attempt of the 3 of us in our new little family :)

            


Overnight went well again. They started feedings of breast milk through a tube so hopefully that will continue throughout the day today and maybe Ellie can start nursing again. It's going to be a slow process since Weston has to re-learn how to suck and swallow, but hopefully now that his heart is fixed he wont have to work so hard at the breathing part at the same time!

We are trying to be very optimistic yet realistic in our timeline of Weston getting better and getting to come home. Keep sending good vibes that he handles the feeding well and hopefully the oxygen level can start to come down. That happens, then we can go upstairs to 'the floor' which is one step closer to home!