I have to admit, it's not easy sitting here everyday working on being patient to give Weston time to catch on to feedings at his own pace. It's hard when there is nothing I can really do in order to help him and we have two really good feedings, then a not so good feeding. I try not to get too discouraged.
I was reminded tonight that it could be much worse. I don't mean that harshly, but another Mom on the floor has her daughter here. They have been here a month more than us and they have another surgery set up tomorrow, as well as a plan for a G tube in order for her daughter to eat because she isn't catching onto feeding at all. She has 3 other boys at home and they live in North Dakota so she can't go home or see her husband and other kids more than every couple of weeks. It's all about perspective, isn't it?
As for Weston, he is starting to slowly gain weight and slowly catch on to eating from the bottle so he gets enough calories. It is still day by day to make sure he gains weight and isn't burning more calories than he is taking in. We did get to add a 5th oral feed today (that means he is offered a bottle 5 out of his 8 feeds) and hope to continue that into tomorrow. We don't want to do too many different things at once so he is pacing himself and we know what the variables are if something doesn't go as planned.
Keep praying Weston is on the up swing and continues to gain weight and catch onto this whole eating thing. They definitely go hand in hand as we take being here day by day. I hope you will take a moment to pray for the other family (and many families) that are also here dealing with similar situations, or things that can be considered much worse.